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About Beth Campbell Duke

Hi, I’m Beth

My Story

When Tony’s health started to really decline, I became what so many of us become: the unpaid coordinator, the medical translator, the keeper of all the information that no single doctor seemed to have. I learned how to navigate a system that wasn’t designed for the way people actually live.

I found myself doing work that was invisible to most everyone around me—tracking medications, coordinating between specialists who didn’t talk to each other, researching treatment options at 2 am, making sure nothing fell through the cracks. The system expected me to do all of this, but no one told me it was part of the job. There was no training. And certainly no paycheque.

That experience changed me. I went from being a science educator who could explain concepts to being an advocate who refuses to accept “that’s just how it is” as an answer.

Now I use my background in biotech, science education and my lived experience to help other patients and care partners avoid some of the pitfalls we encountered. I can be a ‘geek-speak translator’. I help people find their voice when they need to advocate, and I work toward systemic changes that will make this whole journey easier for the people who come after us.